š” Getting Answers: My Journey With Chronic Fatigue, Fibromyalgia & MCS
- Switching Gears RV Diary
- Feb 12, 2024
- 4 min read
Why Dallas Was a Vital First Stop Before Our 7,000-Mile Road TripĀ šššæ
Living with Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Chemical Sensitivity (MCS)Ā isnāt just exhaustingāitās confusing, isolating, and at times, overwhelming. Like many others facing these invisible conditions, I spent years searching for answers, relief, and hope.
Before setting out on our latest adventureāa 7,000-mile RV trip across the countryāwe made a very intentional stop: Dallas, Texas. Why? Because this detour wasnāt just about travel. It was about healing.
In this post, Iām sharing why we made this stop, how working with Dr. Alfred JohnsonĀ has helped me find clarity, and why weāre now traveling with a toy haulerĀ and our pup SadieĀ by our side. If youāre living with chronic illness or caring for someone who is, I hope this offers insight and encouragement as you navigate your own journey.
š§ Understanding the Struggle: When Your Body Just Wonāt Cooperate
For years, Iāve dealt with a trio of conditions that often go undiagnosed or misunderstood:
š“ Chronic Fatigue Syndrome (CFS)
Extreme exhaustion that doesnāt improve with rest. Tasks like walking across the room or taking a shower can feel monumental.
š”ļø Fibromyalgia
Widespread muscle pain, brain fog, and fatigue are just the start. This condition makes everyday living feel like a constant uphill battle.
š§Ŗ Multiple Chemical Sensitivity (MCS)
A heightened sensitivity to environmental triggers like perfumes, cleaning products, smoke, and even certain fabrics or building materials. MCS can make it nearly impossible to spend time in public spaces or traditional housing.
š¬ āItās like your body becomes allergic to the worldāand no one believes you.āIf that sounds familiar, youāre not alone.
š„ Why We Went to Dallas Before Our Big Trip
Before launching into full-time travel, I needed help. Real help. Thatās what led us to Dallas, Texas, and the care of Dr. Alfred Johnson, a physician known for his work in environmental medicine and chronic illness.
š Who is Dr. Alfred Johnson?Dr. Johnson specializes in treating complex chronic illnesses using a blend of conventional medicine, detoxification therapies, and non-invasive approachesĀ like Hyperbaric Oxygen Therapy (HBOT).
His clinic is one of the few places in the country that understands the intricate web of chronic fatigue, fibromyalgia, and MCSāand treats them all under one roof.
For me, this wasnāt just a pit stop. It was a reset.
šØ My Experience with Hyperbaric Oxygen Therapy (HBOT)
One of the core treatments I started in Dallas was Hyperbaric Oxygen Therapy.
šļø What is HBOT?
HBOT involves lying inside a pressurized chamber while breathing 100% pure oxygen. This allows more oxygen to dissolve into your bloodstream, which helps reduce inflammation, boost cellular repair, and improve cognitive function.
⨠What Itās Helped Me With:
Mental clarity
Energy levels
Joint pain
Recovery after exertion
It hasnāt been a magic bulletābut itās been a powerful part of my healing puzzle.
š¾ Switching Gears: Why Weāre Now RVing With a Toy Hauler & Our Pup Sadie
After years of adapting our travel to my energy and exposure limits, weāve made a change. Weāre now traveling with a toy hauler RV, giving us the flexibility and protection we need on the road.
š§¼ MCS-Friendly Living Space
The toy hauler allows me to control my environment, avoiding chemical exposures that would normally trigger symptoms.
š¶ Sadie Joins the Adventure
Our sweet dog SadieĀ has become an integral part of our travels and healing process. From grounding walks to unconditional love, sheās more than just a travel companionāsheās therapy on four legs.
šŗļø Whatās Ahead: A Healing-Focused 7,000-Mile Journey
This isnāt just a road trip for photos and views. Itās a purposeful journeyĀ to support healing while embracing adventure. Our travels are guided by:
Climate-friendly routesĀ (chasing 70 degrees for comfort)
Quiet, natural spacesĀ for rest and reflection
Access to clean food, fresh air, and low-exposure zones
Time to integrate treatmentsĀ from Dallas and continue healing
š” What Iāve Learned (So Far) About Living with Chronic Illness
You have to become your own advocate.No one knows your body better than you do. If a doctor isnāt listening, find one who will.
Healing isnāt linear.There are good days and bad days. Progress isnāt always obviousābut every small win matters.
Community matters.Whether itās online, in-person, or via your travel tribe, find people who understand and support your journey.
Safe environments make a difference.Reducing chemical exposures and managing sensory input has made a world of difference in my ability to function.
You can still live fully, even with limitations.Weāre not waiting to be āall betterā to experience joy. Weāre creating a life that supports healing andĀ happiness.
š§ Considering Treatment for Chronic Fatigue, Fibromyalgia, or MCS?
If youāre exploring options like HBOT, integrative medicine, or environmental detox, consider a consultation with clinics like Dr. Johnsonās. While every path is personal, finding professionals who understand multi-system chronic illnessĀ is a game-changer.
⨠Final Thoughts: Hope, Healing & the Road Ahead
Itās not easy to travel with a body that doesnāt always cooperate. But with the right support, tools, and mindset, itās possible to build a life that works forĀ your healthānot against it.
Dallas wasnāt just a stop on our map. It was a turning point.
As we roll into this next chapterāon wheels, with our toy hauler and Sadie by our sideāweāre filled with more hope than weāve had in a long time. If youāre walking a similar path, know this:
š«¶ You are not alone. Healing is possible. And adventure can still be yours.
š¬ Have You Tried HBOT or Traveled With Chronic Illness?
Weād love to hear your story. Share your experiences, questions, or encouragement in the comments below. Letās support each other on the road to wellness and freedom.







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